Practical Pain Management Community Advice

Back pain Scoliosis

From: roxe53 - 1 year 13 weeks ago

I have back pain really bad plus I have a neurogenic bladder which causes pain also. I have been on Fentynal patch for 20 years and have taken roxie 30's for about 10 or 12 years and it has helped me so much. I can be a mom and can do my daily chores and have a normal life. As normal as a life that I can have but my doctor started trying to get me to stop my meds so I just left his practice and went to a pain management place. They require you to see a shrink and the man they sent me to degraded me and made me feel so small I will not go back to him. The other doctor has cut my meds a lot now and I can't seem to get out of pain. Some days I can't get out of bed and it is really making me depressed. I feel like giving up. I don't know what to do because they only allow me 4 pills a day and since I have been on the fentynal for so long it is not really working as it should so I am getting pain from now my back and my bladder. I live near Philadelphia and I am looking for another doctor who will help me. I am at my wits end and can't take the pain much more. I have been on this 4 a day plan for a month now and 1 fentynal patch every 4 days and it isn't working. Most of the time I have to have my son either get me out of bed because I can't walk or I just stay in bed all day. The doctors I am going are causing me to just want to give up. I have been to many doctors some say I should have surgery but other say that surgery will not help. The one who diagnosed me told me eventually my heart and lungs will be compromised and I do have trouble breathing some times but when I could get around it didn't bother me to bad but laying around is not doing me to good. I just can't stand the pain when I try to walk with just 4 pills a day. These doctors don't understand and they have my life in their hands and they decided what is best for me well they are wrong I know what is best for me not them. I don't know how much more I can take at this pain management place. If anyone knows of a pain management clinic that the patient has the right to talk instead of just the doctor please let me know. I am going to the Interventional Pain Management in Crozer Chester medical center and they are really uncaring and they say do as I say or leave. I am the one who lives in pain not them and its really doing damage to me by not getting the right care from these people. I just want to go back to the way it was not the way it is now. I use to be able to do a lot but now I am mostly in bed on a heating pad because I can't put my feet on the floor without being in dire pain. I am almost ready to give up. Any suggestions??? Is there anything out there new that will help me? I have tried Opana but itmakws me sick and my insurance will not cover it so its too expensive.

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1 Response

Is this good advice?

How far are you able to travel to a doctor in terms of miles? There are other places I know of that may be able to help you but they are not near Philadelphia. There are in DC, and Maryland.